Tangerines from the back yard tree seemed to be an unexpected gathering place where they both enjoyed counting and checking out all the lovely ripened fruit. Sophia said, "well it is a California Christmas", and that is the truth. Pretty girls in Christmas dresses with all their oranges says California for sure.
Ani was born with a rare condition called Tuberous sclerosis complex (TSC, see http://www.tsalliance.org), that causes many complex, difficult physical symptoms. From day one of her diagnosis as a baby, Sophia and Benny have been exploring every possible option to help diminish the impact of this condition for Ani, particularly medication resistant seizures caused by tumors (or tubers) in her brain. Despite Ani’s positive strides in development, over the past two years, her daily seizure frequency and duration have increased significantly, leaving Sophia and Benny to consider surgery to remove brain tissue from which the strongest seizures are generated. In October, Ani underwent surgical brain procedures and treatment at Boston Children's Hospital by some of the world's experts. These invasive procedures were not meant to cure her condition, but were to help diminish her seizures. In that sense the surgeries were a success. Although Ani is still having daily seizures, they are less than what they were prior to surgery.
As a mom of a child who has undergone brain surgery for his seizure disorder, I know all too well the difficulties associated with having to see your child go through such a severe and complex surgery. One of my main goals as a photographer who specializes in photographing children and families with special needs is to bring awareness to the many disorders and conditions that our children are affected with.
To read more about TSC and how you can make a difference in the life of a child with TSC, go to
http://www.tsalliance.org.
Before you do though, check out these two beautiful dolls I had the privilege of photographing.
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