Wednesday, November 20, 2013

Maggie Mae

Sometimes life throws you curve balls and sometimes they seem to just keep coming. My dear friends Tim and Jaime Escobar and their daughter Maggie are facing some of these times right now.

Maggie was one of my very first clients, and is the most amazingly beautiful angelic little girl you could ever know. She has wonderful siblings, Maddie, Marley and Mason who all are the best "big sisters and brother" to her.

Maggie has TSC.  In Jaime's words, "after some seizure activity, she was diagnosed with Tuberous Sclerosis just before her 3 month birthday. Tuberous Sclerosis is a genetic condition characterized by lesions of the skin and central nervous system, tumor growth, and seizures. For more information on Tuberous Sclerosis please visit www.tsalliance.org"

Maggie, just like my Nicholas, struggles with her seizures and various severe medical issues. She is still amazingly strong and resilient and is growing in her daily in home program and other activities. She also though began jabbering away this past year or so and we all just love hearing her voice. Jaime says, "as long as I hear her voice"... and I so can understand that.

Recently Maggie underwent some routine tests for her TSC that turned into some unexpected news. Again, in Jaime's words, "Her doctors have found a cancerous tumor in her kidney. She will have surgery at Stanford (Lucille Packard Children's Hospital) on November 21, to remove the tumor. It is a rare tumor, and it will be sent off to a pathologist to do further testing. Once the pathology report comes back, we will know how aggressive the cancer is and what Maggie's treatment plan will be (whether she will need chemo/radiation or not)."

I am blogging today about the Escobar family and Maggie because they are an amazing family and could use all the prayers they can get so that Maggie is held in good hands during surgery and after for a smooth recovery. Please think of them today, tomorrow during surgery and until she fully heals.

Here is Maggie in all her adorableness!!! (I know it isn't a word... lol)

 

Friday, November 15, 2013

Ng Family Fall Photo Shoot

I had the pleasure of photographing the Ng family recently at McKinley Park. The weather couldn't have been more perfect and the adorable Ng girls, Ani and Evi were just amazing.

Ani was born with Tuberous Sclerosis Complex at 9 months, after several weeks of seizure activity. Since then, (except for 1 -  5-month period as an infant), Annika has never been seizure free. 

You would never know this precious beauty is challenged daily with seizures. She is the sweetest, most darling little girl along with her sister who both just took my breathe away. 

Thank you Sophia and Benny for allowing me to photograph your beautiful family.